A Great Response!

So, my mommy had one of her random ideas -- usually those don't turn out so well (think Lucille Ball), but this time, it did!  It started when she and daddy went to the Nevus Outreach conference in Dallas a couple of weeks ago. They learned so much information about congenital nevi and they got really excited about sharing it.  You see, most medical professionals don't even know much, if anything, about this condition.  Well, mommy thought that the fountain of this information should begin where life does -- at the hospital.  That way, if another baby comes along wtih a Congenital Melanocytic Nevus, the parents will be better informed than mine were up front.  In our case, it took a while for mommy and daddy to find out anything about my condition, which was really scary for them.  Plus, I had some problems with it and no one knew what to do until we finally got to the detmatologist several days later.  So, mommy wrote a letter to the hospital** where I was born asking that they look into this medical condition and educate their staff and pediatricians about it to be better prepared next time it happens.  And guess, what -- THEY ARE!  Mommy fully expected the hospital to disregard her request, but instead she received a very warm, excited response.  She is so happy to hopefully make a difference in the lives of the next people dealing with this.  Thank you, Lori, for taking such an interest in our case and helping us to make a difference.

** Although mommy and daddy love the hospital where I was born and believe they had a reasonably good experience under the circumstances, we are leaving it nameless for privacy purposes.