Tuesday, October 5, 2010

The Books are In!

We are pleased to announce that Cooking It Forward, our fundraising cookbook, is in and available for purchase one month ahead of schedule!  If you would like your book shipped to you, please order off of this website using the "Buy Now" button on the right side of this page.  If you live in the Central Phoenix or East Valley area, mommy is willing to make delivery arrangements.  Please email us at joshua@journeyswithjoshua.com to place your order. If you are ordering a large quantity to be shipped, please email us to arrange bulk shipping INSTEAD of purchasing through this website.  Thank you all for your support and generosity, and for helping me to receive the medical treatment I so greatly need.  God bless.

Sunday, October 3, 2010

Some Early Arrivals

How lucky!  We received notice of two early arrivals this past week.  First, the MRI disc we sent to Nevus Outreach, Inc. has already been reviewed by Dr. Barkovich, a world-renowned pediatric neuro-radiologist at UCSF who is known for detecting Neurocutaneous Melanocytosis in MRI results.  Mommy received his report on Friday afternoon, and she was very pleased when she read it.  Dr. Barkovich did NOT find any spots on my brain or spine other than what the local doctors found.  He did note that my spine has some asymmetry towards the bottom, so mom and dad will need to discuss that with my neurologists, but they are very relieved that this expert agrees I only have one small spot of melanosis on my brain.

Additionally, mommy received a shipping notice from her cookbook publisher ... the books are going to be available nearly a month ahead of schedule!  She is due to receive them this coming Tuesday.  We are all very excited to see the books and begin sharing them with the many people who supported this project and have been waiting for them. 

So, over the next couple of months, we will be busy with cookbook sales and getting ready for the 5 medical trips we will complete by about this time next year.  Our first upcoming trip is at the end of November, when we will travel to San Fransisco to see a neurologist and dermatologist who are known to be experts on the subject of NCM.  Then, at the end of December, my surgeries will begin.  We are anxiously awaiting these dates, and looking forward to getting past them.