So, Here We Are

I am two-months-old now, and the time has gone by like a whirlwind.  Recently, mommy and daddy discovered a wonderful organization called Nevus Outreach, Inc.  It is a non-profit organization that provides information and support to people with a CMN or parents of a child with one.  They have made some wonderful friends through this group, particularly Beth from South Dakota (mom to 11-month-old Sully) and Merilee from Montana (mom to 4-month-old Brooklyn).  Sully, Brooklyn, and I are all going to the same spectacular surgeon in Chicago, and I hope to see them there during at least one of my trips.

Mommy and daddy recently traveled to the great city of Dallas, Texas, to attend a medical conference sponsored by Nevus Outreach, Inc.  They say it was absolutely amazing.  There were medical experts from all over the world presenting information (much of which I've already told you about) and doing FREE consults on people like me.  They were so excited when they got to meet my surgeon from Chicago, Dr. Bruce Bauer, and his amazing staff, Wendy, Mim and Susan.  Mommy and daddy had such a great time at the conference and were totally energized and inspired by the people they met. 

Mommy has a few of her own missions now.  First, she does lots of praying for me, and is looking for people to join her.  She has faith that this story is going to have a happy ending, and has already achieved so many wonderful experiences out of this situation.  She also wants to help spread the word and teach people about CMNs.  It is sad, but because this is so rare, most medical professionals don't know anything about it.  She's hoping that, at the very least, the hospitals will follow her request to educate their staff, so that other new moms of babies with a CMN will be more informed up front and less scared durng their hospital stays.  Finally, mommy is going to create and publish a cookbook to help fund my many trips to Chicago.  That is going to be a big job, but it should be worthwhile.  She was inspired to do so by Beth from South Dakota, who did the same thing and welcomed her to join in the fun.  I know it is a huge endeavor, and I appreciate it.  My mommy loves me more than the world, and she hopes I know how special I am to her.  So, mommy is going to be busy, but I'll let you know how it goes.  The first step is over though -- my blog is up!

Now, before I close up shop for the night, I have to share a couple of pictures from the conference.  Mommy loves looking at these pictures, becasue she knows these people are going to be so special in our lives. 

Me with my new Auntie Beth

Notice I'm sporting the awesome Superhero cape she had specially made for me?

Me with Wendy

Wendy is already looking out for mom and I.  We appreciate it, Wendy!!